Christine MacCracken MSHEd, BSN Senior Director & Head, Patient Strategies & Solutions, Office of the Chief Medical Officer, Global Medical Organization Janssen
Atif Qureshi President & Founding Member Lysosomal Storage Disorder Society
Stephanie of Azout-Chaki Caretaker/Mother of Michelle & President FAST LATAM (Foundation for Angelman Syndrome Therapeutics Chapter in Latin America)
Speakers
Lisa Kearns MS, MA, Senior Research Associate, Member, Working Group on Compassionate Use and Pre-Approval Access & Member, Working Group on Paediatric Gene Therapy & Medical Ethics, Division of Medical Ethics NYU Grossman School of Medicine
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