Meet the Speakers

2021 Speakers Include:

Christine MacCracken MSHEd, BSN
Senior Director & Head, Patient Strategies & Solutions, Office of the Chief Medical Officer, Global Medical Organization
Janssen

Tom Watson
Chief Operating Officer
Bionical Emas

Hayley Belli
Assistant Professor, Biostatistics Division, Department of Population Health
New York University School of Medicine

Michael Mittelman
Ambassador, Rare Disease Patient and Cyber Security Consultant
Patient-Center Outcomes Research Institute (PCORI)

Tobias Polak
Director RWD
MyTomorrows

Alix Hall
Managing Director: Policy, Patient Support, and Industry Liaison
The Isaac Foundation

Nina Vas
Vice President, Clinical Distribution, Cell and Gene Supply Chain
Marken

Dr. Rick Thompson
CEO
Findacure

Annie O'Keefe Martin
Lead Medical Governance, Global Access Programs
Sanofi Genzyme

Paula Singer
Global Medical Affairs, Senior Manager Early Access Programs
Alnylam Pharmaceuticals

Christine Von Raesfeld
Founder & CEO
People with Empathy

Atif Qureshi
President & Founding Member
Lysosomal Storage Disorder Society

Stephanie of Azout-Chaki
Caretaker/Mother of Michelle & President
FAST LATAM (Foundation for Angelman Syndrome Therapeutics Chapter in Latin America)

Speakers

Lisa Kearns
MS, MA, Senior Research Associate, Member, Working Group on Compassionate Use and Pre-Approval Access & Member, Working Group on Paediatric Gene Therapy & Medical Ethics, Division of Medical Ethics
NYU Grossman School of Medicine

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